Altıngöz EN, Yenisoy Y, Kapusuz A, Abacar K, Şişman-Kitapçı N, Yay M, et al. The mediator role of treatment response on oral health related quality of life in Behçet’s syndrome. Med Oral Patol Oral Cir Bucal. 2024 May 1;29 (3):e350-5.


doi:10.4317/medoral.26319

https://dx.doi.org/doi:10.4317/medoral.26319


1. Karacayli U, Adesanya A, Aksoy A, Belem JMFM, Cardin NB, Sarı FB, et al. The assessment of presenteeism and activity impairment in Behcet's syndrome and recurrent aphthous stomatitis: a multicentre study. Rheumatology (Oxford). 2022;61:1538-47.

https://doi.org/10.1093/rheumatology/keab581

PMid:34289015 

2. Mumcu G, Karacayli U, Yay M, Aksoy A, Tas MN, Armagan B, et al. Oral ulcer activity assessment with the composite index according to different treatment modalities in Behcet's syndrome: a multicentre study. Clin Exp Rheumatol. 2019;37:98-104.

PMid:31856935

3. Alibaz-Oner F, Mumcu G, Kubilay Z, Ozen G, Celik G, Karadeniz A, et al. Unmet need in Behcet's disease: most patients in routine follow-up continue to have oral ulcers. Clin Rheumatol. 2014;33:1773-6

https://doi.org/10.1007/s10067-014-2585-3

PMid:24737283 

4. Churruca K, Pomare C, Ellis LA, Long JC, Henderson SB, Murphy LED, et al. Patient-reported outcome measures (PROMs): A review of generic and condition-specific measures and a discussion of trends and issues. Health Expect. 2021;24:1015-24.

https://doi.org/10.1111/hex.13254

PMid:33949755 PMCid:PMC8369118

5. Pattinson RL, Trialonis-Suthakharan N, Gupta S, Henry AL, Lavallee JF, Otten M, et al. Patient-Reported Outcome Measures in Dermatology: A Systematic Review. Acta Derm Venereol. 2021;101:adv00559..

https://doi.org/10.2340/00015555-3884

PMid:34263330 PMCid:PMC9425604

6. Slade A, Isa F, Kyte D, Pankhurts T, Kerecuk L, Ferguson J, et al. Patient reported outcome measures in rare diseases: a narrative review. Orphanet J Rare Dis. 2018;13:61.

https://doi.org/10.1186/s13023-018-0810-x

PMid:29688860 PMCid:PMC5914068

7. Rener-Sitar K, John MT, Truong V, Tambe S, Theis-Mahon N. Nonmalignant Oral Disease--Specific Dental Patient-Reported Outcome Measures for Adult Patients: A Systematic Review. J Evid Based Dent Pract. 2021;21:101529.

https://doi.org/10.1016/j.jebdp.2021.101529

PMid:34051957 

8. Larson E, Sharma J, Bohren MA, Tuncalp O. When the patient is the expert: measuring patient experience and satisfaction with care. Bull World Health Organ. 2019;97:563-9.

https://doi.org/10.2471/BLT.18.225201

PMid:31384074 PMCid:PMC6653815

9. Nguyen C, Kortlever JTP, Gonzalez AI, Ring D, Brown LE, Somogyi JR. Attempts to Limit Censoring in Measures of Patient Satisfaction. J Patient Exp. 2020;7:1094-100.

https://doi.org/10.1177/2374373520930468

PMid:33457550 PMCid:PMC7786736

10. Hatemi G, Meara A, Ozguler Y, Direskeneli H, Mahr A, Shea B, et al. Core Set of Domains for Outcome Measures in Behcet's Syndrome. Arthritis Care Res (Hoboken). 2022;74:691-9.

https://doi.org/10.1002/acr.24511

PMid:33202101 

11. Hatemi G, Meara A, Ozguler Y, Dirskeneli H, Mahr A, Easley E, et al. Developing a Core Set of Outcome Measures for Behcet Disease: Report from OMERACT 2016. J Rheumatol. 2017;44:1750-3.

https://doi.org/10.3899/jrheum.161352

PMid:28365574 PMCid:PMC7217335

12. Mumcu G, Inanc N, Ergun T, Ilkiz K, Gunes M, Islek U, et al. Oral health related quality of life is affected by disease activity in Behcet's disease. Oral Dis. 2006;12:145-51.

https://doi.org/10.1111/j.1601-0825.2005.01173.x

PMid:16476035 

13. Baron RM, Kenny DA. The moderator-mediator variable distinction in social psychological research: Conceptual, strategic, and statistical considerations. JJ Pers Soc Psychol. 1986;51:1173.

https://doi.org/10.1037/0022-3514.51.6.1173

PMid:3806354 

14. Hayes AF, Rockwood NJ. Regression-based statistical mediation and moderation analysis in clinical research: Observations, recommendations, and implementation. Behav Res Ther. 2017;98:39-57.

https://doi.org/10.1016/j.brat.2016.11.001

PMid:27865431 

15. Criteria for diagnosis of Behcet's disease. International Study Group for Behcet's Disease. Lancet. 1990;335:1078-80.

https://doi.org/10.1016/0140-6736(90)92643-V

PMid:1970380

16. Krause I, Mader R, Sulkes J, Paul M, Uziel Y, Adawi M, et al. Behcet's disease in Israel: the influence of ethnic origin on disease expression and severity. J Rheumatol. 2001;28:1033-6.

PMid:11361184

17. Sheeran N, Jones L, Pines R, Jin B, Pamoso A, Eigeland J, et al. How culture influences patient preferences for patient-centered care with their doctors. J Commun Healthc. 2023;16:186-96.

https://doi.org/10.1080/17538068.2022.2095098

PMid:37401877 

18. McGee RG. How to Include Patient-Reported Outcome Measures in Clinical Trials. Curr Osteoporos Rep. 2020;18:480-5.

https://doi.org/10.1007/s11914-020-00611-5

PMid:32757118 

19. Hamuryudan V, Hatemi G, Sut N, Ugurlu S, Yurdakul S, Yazici H. Frequent oral ulceration during early disease may predict a severe disease course in males with Behcet's syndrome. Clin Exp Rheumatol. 2012;30:S32-4.

PMid:22935508

20. Mumcu G, Yay M, Karacayli U, Aksoy A, Tas MN, Armagan B, et al. Moderation analysis exploring associations between age and mucocutaneous activity in Behcet's syndrome: A multicenter study from Turkey. J Dermatol. 2020;47:1403-10.

https://doi.org/10.1111/1346-8138.15553

PMid:32981075 

21. Mumcu G, Sur H, Inanc N, Karacayli U, Cimilli H, Sisman N, et al. A composite index for determining the impact of oral ulcer activity in Behcet's disease and recurrent aphthous stomatitis. J Oral Pathol Med. 2009;38:785-91.

https://doi.org/10.1111/j.1600-0714.2009.00803.x

PMid:19614861 

22. Mumcu G, Inanc N, Taze A, Ergun T, Direskeneli H. A new Mucocutaneous Activity Index for Behcet's disease. Clin Exp Rheumatol. 2014;32:S80-6.

PMid:25068759

23. Hatemi G, Mahr A, Takeno M, Kim D, Melikoglu M, Cheng S, et al. Impact of apremilast on quality of life in Behcet's syndrome: analysis of the phase 3 RELIEF study. RMD Open. 2022;8:e002235.

https://doi.org/10.1136/rmdopen-2022-002235

PMid:35798511 PMCid:PMC9263903

24. Mumcu G, Ergun T, Inanc N, Fresko I, Atalay T, Hayran O, et al. Oral health is impaired in Behcet's disease and is associated with disease severity. Rheumatology (Oxford). 2004;43:1028-33.

https://doi.org/10.1093/rheumatology/keh236

PMid:15161982 

25. Hayran O, Mumcu G, Inanc N, Ergun T, Direskeneli H. Assessment of minimal clinically important improvement by using Oral Health Impact Profile-14 in Behcet's disease. Clin Exp Rheumatol. 2009;27:S79-84.

PMid:19796539

26. Yay M, Celik Z, Aksoy A, Alibaz-Oner F, Inanc N, Ergun N, et al. Oral health is a mediator for disease severity in patients with Behcet's disease: A multiple mediation analysis study. J Oral Rehabil. 2019;46:349-54.

https://doi.org/10.1111/joor.12750

PMid:30466164 

27. Mumcu G, Yagar F, Alibaz-Oner F, Inanc N, Direskeneli H, Ergun T. Does illness perception associate with disease symptoms in Behcet's disease? Intern Emerg Med. 2019;14:691-7.

https://doi.org/10.1007/s11739-018-1983-y

PMid:30506212 

28. Floris A, Espinosa G, Serpa Pinto LS, Kougkas N, Monaco AL, Lopalco G, et al. Discordance between patient and physician global assessment of disease activity in Behcet's syndrome: a multicenter study cohort. Arthritis Res Ther. 2020;22:278.

https://doi.org/10.1186/s13075-020-02362-1

PMid:33239083 PMCid:PMC7687797

29. Fragoulis GE, Bertsias G, Bodaghi B, Gul A, Laar JV, Mumcu G, et al. Treat to target in Behcet's disease: Should we follow the paradigm of other systemic rheumatic diseases? Clin Immunol. 2023;246:109186.

https://doi.org/10.1016/j.clim.2022.109186

PMid:36410686 

30. Marinello D, Del Bianco A, Manzo A, Mosca M, Talarico R. Empowering rare disease patients through patient education: the new BehceTalk programme. BMC Rheumatol. 2022;6:17.

https://doi.org/10.1186/s41927-022-00247-1

PMid:35220963 PMCid:PMC8883708